Online, 14/09/2023.
Next in our series meet iToBoS is our MPNEurope colleague Gilliosa Spurrier-Bernard.
MPNE is proud partner in iToBoS (Intelligent Total Body Scanner for Early Detection of Melanoma), an EU-funded project developing an AI diagnostic platform for the early detection of Melanoma and in the coming days, you got the opportunity to meet our fantastic iToBoS consortium colleagues who will share some of their expertise from a considerable range of topics- from data anonymisation over how to build a body scanner or the lenses you would like for that or how to design a clinical trial to validate such a scanner.
MPNEurope is leading the iToBoS (Intelligent Total Body Scanner for Early Detection of Melanoma) work package on patient engagement. One of our tasks is to reflect on the impact of patient engagement on the project. You might have noted that it is usually *other* stakeholders who try to measure the impact of patient engagement on *their* work, to then define value for *themselves*.
We thought it was high time for us as patient advocates to provide the much-needed counter-perspective- the primary reason for people like us to engage is to make a difference for patients, not to deliver value to other stakeholders. And then, we had people coming back to us in MPNEurope to work with us again 'because it was so valuable'. However, when pushed, they couldn't answer what exactly had been so valuable- and neither could we 🤔 .
Luckily for us, Gilliosa SPURRIER-BERNARD has a past life in humanitarian work, including how to draft theories of change, how to plan your actions accordingly- and how to find out whether you are actually having any impact. So join us on Thursday 3pm to listen to her thoughts on how we might adapt existing frameworks from other fields to assess the impact of patient engagement (our work!) on research projects!
So sign-up here https://lnkd.in/d43hPkwt and share the invite!
Did you miss it or want to see it again? Find it on our YouTube channel.