The Melanoma Patient Network Europe is a volunteer network system of European Melanoma patients and carers and has established a system to effectively share and teach up-to-date scientific information in Melanoma. MPNE is also one of the founding members of WECAN, the Working group of European Cancer patient Advocacy Networks and the initiator of WECAN SCIENCE, a program dedicated to scientific training for cancer patient advocates.
Over the years, MPNE has established a reputation of being a highly skilled and technical patient network and is now a thought-after partner in multi-stakeholder initiatives in oncology. BR, GS and AV as project participants have professional scientific backgrounds and extensive experience in education from a basic to the most advanced level. As chair of the ESMO patient advocacy working group, BR was responsible for the advocacy track of the annual ESMO meetings and organised multi-stakeholder/ multi-perspective meetings on diverse topics- such as risk sharing agreements, adaptive licensing, affordability but also on the interface of fundamental research and clinical application such as pharmacogenomics/ side effect management and immunology/ immuno-oncology. MPNE regularly provides input into clinical guidelines, clinical trial protocols and research strategies; BR is member of the Horizon Europe Cancer Mission Board.
Learn more about us at www.melanomapatientnetworkeu.org.
Main role in the project
MPNE will ensure that the patient perspective is integrated throughout the project and provide the linkage between the consortium and the wider European Melanoma patient community.